The DMD-QoL has a hierarchical (or ‘higher-order’) factor structure, with 3 lower-order factors (physical, social, and psychological) and 1 higher-order factor (overall quality of life [QoL], comprised of the 3 lower-order factors).
A simple, summative scoring system is proposed for each of the 3 lower-order factors, and consequently the higher-order factor (QoL) being a composite score of these.
Higher scores represent a more positive QoL (overall or within each subscale).
The DMD-QoL-8D is also available to licence and is a preference-based measure that can be used to generate utility values to produce quality-adjusted life years (QALYs).
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