Development stages of Ox-PAQ:
Ox-PAQ items, which had previously been informed using the nine chapters of the ICF, 41 patient interviews, expert reviews and 13 cognitive interviews , were administered by postal survey to 386 people with three neurological conditions; Parkinson’s disease, amyotrophic lateral sclerosis, and multiple sclerosis. Participants also completed the MOS 36-Item Short Form Survey (SF-36) and EQ-5D-5L. Consenting participants were also sent the OxPAQ items to complete again after a period of two weeks.
162 men and 172 women completed the survey achieving a response rate of 86.5%. The mean age of the sample was 60.06 years (SD 12.10).
- Routine Activities (14 items), assesses individuals’ capacity to engage in regular activities that form the basis of daily life.
- Emotional Well-Being (5 items), gives an indication of current mental health status.
- Social Engagement (4 items), reflects how well, or otherwise, individuals are able to maintain relationships, both personal and from a wider community perspective.
Internal reliability (n= 334) for the three domains was high (corrected item-total correlations 0.87-0.60, Cronbach’s α .81-.96). Good test-retest reliability was found among those who completed the Ox-PAQ again after a two week interval (n=127). Intra-class correlation coefficients ranged from 0.83 to 0.92.
Concurrent validity was demonstrated through highly significant relationships with relevant domains of the MOS SF-36 and the EQ-5D-5L. Known-groups validity was demonstrated through ANOVA results indicating statistically significant differences between the three conditions for all three domains; Routine Activities, F(2, 311) = 45.66, p < .01; Emotional Well-Being, F(2, 330) = 10.64, p < .01; Social Engagement, F(2, 326) = 14.16, p < .01.
The responsiveness of the Ox-PAQ is currently being assessed in an online survey, the data from which will be published in due course.
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