The PECUNIA RUM was developed as a 37-page pen and paper questionnaire in English by the scientific partners of the PECUNIA Consortium between mid-2019 and June 2021. It has a modular structure of 9 sections covering questions related to:
- Place of living and overnight stays (Section A)
- Non-residential health and social care (Section B)
- Medication (Section C)
- Unpaid help (informal care) (Section D)
- Education (Section E)
- Employment and productivity (Section F)
- Safety and justice system (Section G)
- Out-of-pocket and other expenses (Section H)
- Final remarks (Section I).
While Sections A, B, C, D, E, G, H were all developed newly, the section on ’Employment and productivity’ (Section F, the IPCQ PECUNIA) is based on the existing IPCQ instrument. The different modules have been harmonised with each other and development included the following steps: a comprehensive scoping review to identify existing RUM recommendations, a focus group of health economists to provide feedback on the first draft, an initial wording review, a professional English language editing, piloting in (online) interviews with former mental health care users and carers, and a formal translatability assessment.
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