Endometriosis Health Profiles: Assessing quality of life for women living with endometriosis

For the past 20 years, a set of specialised questionnaires known as the Endometriosis Health Profiles (EHP) developed by researchers at the University of Oxford have been helping healthcare professionals assess how endometriosis and its treatments affect women’s quality of life, and bringing widespread benefits both to the sector and to women’s health and wellbeing. 

Designed with a focus on the patient’s experience, the EHPs offer valuable insights into the personal impact of the condition. Users can also add six supplementary modules to address additional health areas relevant to each patient. Since 2008, more than 450 copyright licences have been granted globally, with 68% used in publicly funded treatment or academic research, supported by 64 translations. Over 293,000 patients have used the EHP, giving them a voice in their care and helping clinicians make informed treatment decisions.  

In terms of lasting impact, a review of 139 studies found that most women reported improvements in health-related quality of life after treatment, with surgical interventions showing the most significant and lasting benefits. The EHP questionnaires are particularly well-suited for clinical trials of new therapies. For instance, in 2022, the US Food and Drug Administration approved a new treatment, Myfembree, for endometriosis pain, with data from the EHP forming a key part of the trials.